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Caring for Someone with AIDS at Home

Here's information for the caregiver about how to take care of a housebound AIDS patient. From: Centers for Disease Control and Prevention
By: Centers for Disease Control and Prevention

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Final Arrangements

A person with AIDS, like every other adult, should have a will. This can be a difficult subject to discuss, but a will may need to be written before there is any question of the mental competence of the person with AIDS. You may want to be sure the person you are caring for has a will and that you know where it is.

Living wills, which specify what medical care the person with AIDS wants or does not want, also have to be written before their mental competence could be questioned. You, as the caregiver, may be the person asked to see that the doctors follow the wishes of the person with AIDS. This can be a very hard experience to deal with, but is another way of showing respect for a dying person. You may want to be sure the person you are caring for knows that they can control their medical care through living wills.






Often, people who know that they will die soon choose to make their own funeral or memorial arrangements. This helps make sure that the funeral will be done the way they want it done. It also makes things easier for those left behind. They no longer have to guess what their friend or loved one would have wanted. You may be asked to help the person with AIDS plan the funeral, make arrangements with the funeral home, and select a cemetery plot or mausoleum. You may be able to help the person with AIDS decide how they wish to be buried or if they want to be cremated.

After the death, there will still be things to do. Programs that have been providing help, such as Supplemental Security Income, will have to be officially informed of the death. Some money already sent or received may have to be returned. The will may name you, a relative, or another person as the one to handle these tasks.

Centers for Disease Control and Prevention. Publication: Caring for Someone with AIDS at Home. 1996. (Online) http://www.hivatis.org/caring


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