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LIVING WITH HIV/AIDS
Department of Health and Human Services
Public Health Service
This booklet is for people who are infected with the human immunodeficiency virus (HIV) and for their friends and families. HIV is the virus that causes acquired immunodeficiency syndrome (AIDS).
Although infection with HIV is serious, people with HIV and AIDS are living longer, healthier lives today, thanks to new and effective treatments. This booklet will help you understand how you can live with HIV and keep yourself healthy.
You probably have many questions about HIV, such as
This booklet will give you answers to these questions. You can also ask your doctor any questions you have about HIV. Other sources of information about HIV are listed at the back of this booklet.
What is HIV and how did I get it?
HIV is the virus that causes AIDS. The first cases of AIDS were identified in the United States in 1981, but the virus probably existed here and in other parts of the world for many years before that. In 1984, scientists proved that HIV causes AIDS.
Ways you might have gotten HIV
Ways you did NOT get (and no one else can get) HIV
What is the difference between HIV and AIDS?
HIV is the virus that causes the disease AIDS. Although HIV causes AIDS, a person can be infected with HIV for many years before AIDS develops.
When HIV enters your body, it infects specific cells in your immune system. These cells are called CD4 cells or helper T cells. They are important parts of your immune system and help your body fight infection and disease. When your CD4 cells are not working well, you are more likely to get sick.
Usually, CD4 cell counts in someone with a healthy immune system range from 500 to 1,800 per cubic millimeter of blood. AIDS is diagnosed when your CD4 cell count goes below 200. Even if your CD4 cell count is over 200, AIDS can be diagnosed if you have HIV and certain diseases such as tuberculosis or Pneumocystis carinii [NEW-mo-SIS-tis CA-RIN-nee-eye] pneumonia (PCP).
There are general stages of HIV infection that you may go through before AIDS develops.
How long does it take to go from HIV infection to a diagnosis of AIDS?
There is no one answer to this question because everyone is different. Estimates of the average length of time for progression from HIV to AIDS are being developed. Before antiretroviral therapy became available in 1996, scientists estimated that AIDS would develop within 10 years in about half the people with HIV. Since 1996, new medical treatments have been developed that can prevent or cure some of the illnesses associated with AIDS, though they cannot cure AIDS itself.
Various factors, including your genetic makeup, can influence the time between HIV infection and the development of AIDS.
Time between HIV infection and AIDS
What is clear is that you have some control over the progression of HIV infection.
How can I stay healthy longer?
There are many things you can do for yourself to stay healthy. Here are a few.
There are also many things you can do to protect your health when you prepare food or eat, when you travel, and when you’re around pets and other animals. You can read more about these things in the brochures in the CDC Opportunistic Infection series. You can get these brochures and other information about HIV by calling CDC-INFO at 1-800-232-4636 or by going to the CDC Internet address, www.cdc.gov/hiv/dhap.htm.
What can I expect when I go to the doctor?
During your first appointment your doctor will ask you questions, examine you, take a blood sample, and do some other tests. Your doctor also may do a skin test for tuberculosis and give you some immunizations (shots).
Tell your doctor about any health problems you are having so that you can get treatment. You also should ask your doctor any questions you have about HIV or AIDS, such as
Your blood sample is used for many tests, including the CD4 cell count and viral load. Your CD4 cell count tells you how many CD4 cells you have in your blood. If you are getting treatment, your CD4 cell counts indicate how well it is work ing. If your CD4 cell count rises, your body is better able to fight infection. Viral load testing measures the amount of HIV in your blood. Your viral load helps predict what will happen next with your HIV infection if you don’t get treatment.
Keep your follow-up appointments with your doctor. At these appointments you and your doctor will talk about your test results, and he or she may prescribe medicine for you.
What is the treatment for HIV or AIDS?
HAART may cause some side effects. You and your doctor should discuss potential side effects so that you will know if they occur. If you experience any side effects, even those that may seem minor, you should talk about them with your doctor.
The most important thing you can do after you learn that you have HIV is to work closely with your doctor. Be cause HIV and HIV-related illnesses vary from person to person, your doctor will design a medical care plan specifically for you. To help your doctor make the best choices for you, you must tell your doctor about any side effects or symptoms you have.
What are some of the other diseases I could get?
Because HIV damages your immune system, you may have a higher chance of getting certain diseases, called opportunistic infections. They are so named because an HIV-infected person’s weakened immune system gives these diseases the opportunity to develop. Fortunately, people with HIV who are taking HAART can go a long time before their immune system is damaged enough to allow an opportunistic infection to occur. That’s why it is so important to get tested and start treatment early. Many people may not know they have HIV until AIDS and an opportunistic infection develop. Many germs can cause opportunistic infections.
Certain symptoms can occur with opportunistic infections.
Tell your doctor right away if you have any of these problems. Your doctor can treat most of your HIV-related problems, but sometimes you may need to go to a specialist. Visit a dentist at least twice a year, more often if you have mouth problems.
You can learn more about how to prevent the most serious opportunistic infections by reading the brochures in the CDC Opportunistic Infections series. You can get these brochures by calling CDC-INFO at 1-800-232-4636.
How do I protect other people from my HIV?
Things you SHOULD do
Things you should NOT do
Is there special advice for women with HIV?
Yes. If you are a woman with HIV, your doctor should check you for STDs and perform a Pap test at least once a year.
As a woman with HIV, you are more likely to have abnormal Pap test results. Infection with HIV means your body is less effective in controlling all types of viruses. The human papilloma virus (HPV) is a specific virus that can infect cervical cells (the cells that the Pap test looks at). Your doctor may recommend a special test that can look for HPV as part of your exam. If your Pap test result is abnormal, your doctor may need to repeat it or do other tests. If you have had an abnormal Pap test result in the past, tell your doctor.
If you are thinking about avoiding pregnancy or becoming pregnant, talk with your doctor. You might ask some of the following questions:
If you become pregnant, talk to your doctor right away about medical care for you and your baby. You also need to plan for your child’s future in case you get sick.
Your HIV treatment will not change very much from what it was before you became pregnant. You should have a Pap test and tests for STDs during your pregnancy. Your doctor will order tests and suggest med i cines for you to take. Talk with him or her about all the pros and cons of taking medicine while you are pregnant.
Talk with your doctor about how you can prevent giving HIV to your baby. It is very important that you get good care early in your pregnancy. The chances of passing HIV to your baby before or during birth are about 1 in 4, or 25%, but treatment with antiretroviral medicines has been shown to greatly lower this risk. Your doctor will want you to take these medicines to increase your baby’s chance of not getting HIV.
Although you are pregnant, to avoid catching other diseases and to avoid spreading HIV, you should still use condoms each time you have sex. Even if your partner already has HIV, he should still use condoms.
After birth, your baby will need to be tested for HIV, even if you took antiretroviral medicines while you were pregnant. Your baby will need to take medicine to prevent HIV infection and PCP. Talk with your doctor about your baby’s special medical needs. Because HIV infection can be passed through breast milk, you should not breast-feed your baby.
Where can I find help in dealing with HIV?
If you are living with HIV or AIDS, you may need many kinds of support: medical, emotional, psychological, and financial. Your doctor, your local health and social services departments, local AIDS service organizations, and libraries can help you in finding all kinds of help, such as the following:
You can also get help by calling CDC-INFO at 1-800-232-4636.
Many people living with HIV feel better if they can talk with other people who also have HIV. Here are some ways to find support.
Today, thousands of people are living with HIV or AIDS. Many are leading full, happy, and productive lives. You can too if you work with your doctor and others and take the steps outlined in this booklet to stay healthy.
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